Sunday, October 20, 2013

Surgery date!

We had our two month follow up with Dr. Pantel yesterday. He measured her head and said that she is growing as expected. We discussed her milestones which she is hitting them all on time. He asked if we had any more questions since we had a few months to think about things. I asked him since this could be genetic,  what that means for our future children and Renae's children. He said that 1 in 2000 children will get some form of this but now that we have already had a child with it that we now have a 1 in 50 chance. The same with Renae's children. 1 in 50. 😞  He also said that the shots he wants to start giving her a month before to help increase her white blood sell count is still waiting for approval from the pharmacy. They use this for other surgeries at Akron Children's but never for this surgery. So approvals every where for it. He's not worried he said it will be approved by December for her. We scheduled her last follow up for mid December.
 They called the next day with the surgery date.

January 20th at 8am!! 
Seems so close. Least it's after the holidays! 

As many of you know I have been selling my homemade pumpkin rolls and putting the profit towards her surgery. I have made a little of 40 of them! Got at a least 10 to make today!! So if you want one please message me. They are $10.

Hopefully Bobby will be setting up a bank account this week to put all the donations and money we have been getting from these pumpkin rolls in there. Once I get that info I'll pass it on to you guys.

Well that's it for this blog! Thanks for reading!

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